Tuesday, July 10, 2012


Doing what I do when I'm stressed - cooking.  Planning to make spanakopita and cannolis.  I know, odd combination.  But one I love, the other should put some more meat on Cole's bones.

After spending the morning at the hospital, supposedly for blood tests, we were sent on our way.  According to the technician, there was an issue with how the specimens were to be transported that needed to be worked out before the draw could be done.  Really?  They've been coordinating this draw for two weeks, we have our out of network approvals and were told to show up today.  We have been jumping through hoops for a year now, still with no end in sight.  At this point if I could wave a wand to get answers other than "we need more tests" I would.  Actually, I'd settle for driving the blood to Philly and Cincinnati myself!

Honestly, my overall frustration level at being backed into a corner where I can do so little for my child is beyond words.  I know and appreciate that the doctors are doing what they can, especially by seeking other experts and looking into all their suspicions, but inside I'm irrationally screaming because when it is a child it nothing should take this long.

Needless to say, we are still waiting, not for answers, but for the draw itself.  Then the real wait starts.  For this moment, while my girls play and my boy sleeps, I will cook.  Hopefully the kids approve of today's treats.


  1. real quick question: What is spanakopita...??? Never heard of it!

    Frustration: Have you ever had a proffessionally done full-body massage? It is amazing and a good stress reliever. I usually go like once a year...and if i could afford it, i would do it at least once a month! Now this is comming from someone who is ultra-sensitive to touch and presssure...but it feels sooo amazing and relaxing if done by the right person.

    I am actually preparing to go see a ob/gyn doctor myself. I am going to start a journey that will get me back on track with my HRT (Hormone Replacement Therapy) I hope the doc i go to will have a clue about by condition or at least reccomend me to someone who does. It is my suspicion (not self-diagnosing...yet (although tempting)) that I have a genetic condition called Turner's syndrome. It is a genetic condition in which the second x chromosone is either missing all together or it's there but not complete...resulting in hypogonadism.

    1. Sally,

      Spanakopita is a Greek spinach and feta pie. It is wonderful and very easy to make. The phyllo dough can be a pain, but it is worth it. We have a share at a co-op farm and had spinach to use and this seemed the right way to use it this week. I can always post the recipe I use ifyou are interested.

      I did massage when I was pregnant with my second. I loved it, but it is pricey! I certainly could use one these days - maybe I will look to indulge - tough to find time during the day while my hubby is working and I have all three kiddos.

      Good luck with your medical journey. Are they looking into genetic testing? It is long, but worth it. I wish they could run everything at once, but they only run the necessary tests for what is suspected, which after learning about the process, makes sense. Maybe one day in the future it will be different. What will they be able to do for you if it is Turner's syndrome? Is it serious?

      I will keep you in my thoughts and prayers hoping that everything turns out well.

  2. This comment has been removed by the author.