Thursday, January 31, 2013


Labs came back completely normal, yet Cole's bleeding is not subsiding.

At this point, doctors have a few ideas as to what could be causing this latest flare.  First and foremost, they believe it could be a side effect of the medication he has been on over the past year and a half.  So for now, we have stopped his meds to see if this helps stop the flare.

In the past, Cole was given a course of steroids to help with  flare.  Unfortunately, due to his diagnosed immunodeficiency they are no longer an option as they suppress his system, compromising the rest of his health.

After two days med free, the flare continues.  We're trying our best to keep Cole comfortable.  At two, it is still hard for him to tell us how he is feeling, although he's been irritable, clingy, and refusing most foods.  Since he drinking, doctors feel he is  ok for the time being.

For now, I just feel helpless.  I want to do something to help him feel better, but really don't know what to do for him besides snuggling, reading and playing.  Here's hoping while the winds are wicked today, things inside the house and Cole's little body wane into calm.

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