Wednesday, November 5, 2014


Still waiting for the update from our doctor.

When you're a parent waiting for news it is frustrating to be told you will hear in two days and be going on a week.  

I know it all takes time, and this situation is complex, but we have now spent years waiting.  In some ways, it is ok because it means for years, our precious boy has been getting through all of this one day at a time.  On the other hand, I am beyond ready for answers so we know if he can go to pre-k next year or not.  He is growing up and some things cannot be put on hold indefinitely.

Fingers crossed we get a call today or tomorrow.  Not that we will have answers, but we will know which tests we are facing.  At least if they decide before his infusion next week we can do all the blood draws then, which is a plus for sure!

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