Wednesday, July 8, 2015


So Cole's Facebook page has kind of taken over for short posts.  I really have so much to update here, and will be a bit more diligent in doing so.  I have to thank you all for being so loyal as followers and really commenting a ton on Cole's Facebook page. :)

Yesterday we ran a few errands because the weather was miserable here again.  I'm a sucker for a clearance, and happened to see some Cars sneakers on the rack.  Cole was so excited...they are the perfect size for fall, just a little bigger than he is now.  He put them on, saw they lit up and exclaimed, "Yeah!!! My sneakers for school!"

School.  School is something we still don't know if he will be able to do.  School is something he asks to do each time we drop the girls off or pick them up.  This fall is supposed to be preschool.  I'm not opposed to having to homeschool, but as a former educator, there is a big part of me that would like him to have the school experience, academically and socially.

At his infusion two weeks ago, more blood was sent down to Houston.  Doctors are once again evaluating his nk cell function and hoping there might be a change.  For now, preschool is off limits, which makes me a little sad.  My girls both had incredible experiences in their programs, thus one of my big reasons for wanting the same for Cole.

Cole does have teachers that come to him.  Luckily, we have been assigned an amazing speech teacher and will be working with her again in the fall as well as an occupational therapist.  He loves to see his teacher and is not only excited about his time with her but demonstrating what he practiced with her once she leaves.  Far cry from the worry I had whether or not he would want to work with her, this summer he has been missing her!

Until then, as we start gathering supplies for the fall, I will keep my fingers crossed for Cole.  Even if he can't go to "school" he will have school, and I will do my best to create as much excitement as I can, even down to his new sneakers and his very own backpack only for school, not the hospital, just as he asked.

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