Talk about cake! In at 6:30 out by 8:15! While getting tubes is still a surgery, it is almost crazy to me how quick and routine today was, a walk in the park, when many of our appointments eat entire days.
I can't say enough about the kindness of the nurses we have had at Children's Hospital for all of Cole's procedures. Their kindness can warm a room, their compassion can fill your heart. Today was no exception.
Knowing of Cole's exposure issues, our post-op nurse today was not only careful, but moved through the motions quickly so we could get out of dodge before the next round of patients were trudging onto the floor. I can't even explain how deeply I appreciated this, as the petri dish of a hospital scares me more than any horror movie could. Necessary risks are one thing, but lingering around beyond necessity where germs like to congregate is uncalled for. Our nurse completely understood just from his chart, without a word from me. Best part about today, she cared for him, and eased my worries with her attention and understanding. To all the wonderful nurses out there, thank you.
Polar Express is just about over, and I need to keep my monkey calm today, so I am off to build one heck of a train track. Hopefully this will capture his attention like it usually does until lunch.
Hugs to you all!
Friday, December 7, 2012
Thursday, December 6, 2012
Sailing
Early start tomorrow. Bag is packed and ready with things for the little man to do while he waits in his quarantined room. Even got him a new Mater, a Doctor Mater. It just seemed appropriate for another procedure at Children's.
This one is an easy one, tubes. Between the girls, we've done this one three times already, so in that sense, we know what to expect. Still, I'll feel better once Cole is out of the anesthesia. As much as I dislike putting him under again, by doing so, we are able relieve one of his ailments, which, is a plus.
Looking forward to smooth sailing through surgery and a weekend full of snuggles. Best medicine for both of us.
This one is an easy one, tubes. Between the girls, we've done this one three times already, so in that sense, we know what to expect. Still, I'll feel better once Cole is out of the anesthesia. As much as I dislike putting him under again, by doing so, we are able relieve one of his ailments, which, is a plus.
Looking forward to smooth sailing through surgery and a weekend full of snuggles. Best medicine for both of us.
Tuesday, December 4, 2012
Diverged
Taking full advantage of the weather, Cole and I spent the morning walking through Chestnut Ridge. While we were there, he fell asleep in the stroller, so I kept going.
Wandering off the path, crinkling through the leaves, I immediately thought of Frost. The Road Not Taken, forever a metaphor for the routes I've traveled throughout my life echoed in my head. "Two roads diverged in a yellow wood, and sorry I could not travel both." Sort of like the fork between logic and emotion, both are inviting to travel, yet being one traveler, there is only one chance to choose the destination.
All day today, the poem has been whispering in my ear, echoing in my mind. Thinking back on the changing currents which have brought me to where I am today, I remembered I have and can endure any obstacle in my way to where I am headed. So even with each hurdle, I know in the end, they merely make me stronger, make me push harder, making a difference. This journey with Cole has been so different than with my girls, but has opened my eyes, seeing in much more vivid Technicolor, like Dorothy in Oz.
Regardless of the detours, I've always found my destination, even without a map for guidance. And I know I will continue to find my way regardless if I follow logic or emotion since the roads I've taken have made all the difference.
Wandering off the path, crinkling through the leaves, I immediately thought of Frost. The Road Not Taken, forever a metaphor for the routes I've traveled throughout my life echoed in my head. "Two roads diverged in a yellow wood, and sorry I could not travel both." Sort of like the fork between logic and emotion, both are inviting to travel, yet being one traveler, there is only one chance to choose the destination.
All day today, the poem has been whispering in my ear, echoing in my mind. Thinking back on the changing currents which have brought me to where I am today, I remembered I have and can endure any obstacle in my way to where I am headed. So even with each hurdle, I know in the end, they merely make me stronger, make me push harder, making a difference. This journey with Cole has been so different than with my girls, but has opened my eyes, seeing in much more vivid Technicolor, like Dorothy in Oz.
Regardless of the detours, I've always found my destination, even without a map for guidance. And I know I will continue to find my way regardless if I follow logic or emotion since the roads I've taken have made all the difference.
Quick
Quick update - all but one of Friday's tests came back late yesterday afternoon. All were negative for exposures, which is a sigh of relief. As long as the next test comes back the same we are a go for the tubes!
Let the stocking of the freezer meals for the weekend begin! I am already excited for beef on weck soup after a long day at the hospital.
Let the stocking of the freezer meals for the weekend begin! I am already excited for beef on weck soup after a long day at the hospital.
Monday, December 3, 2012
Latest
After two weeks home, Gwyn is finally able to return to school this morning. As excited as she is to go back, I must say, I am going to miss her being here during the day. From worksheets and crafting to decorating, we've kept ourselves rather busy this week.
Of course, we've also had our share of appointments to run to as well. In fact, Friday's was one we were not expecting. After noticing a few spots around Cole's chin that quickly exploded into hives on his cheek, immunology said they wanted to see him at the hospital. By the time they saw us, the spots had multiplied, spreading to his back. While they ran various tests, since we will not have any results until today at the earliest, Cole was started on a course of antivirals to combat any of the possible exposures he cannot fight.
Unfortunately, all of these developments may need us to wait on this week's procedure.
In the meantime, we are still waiting for the other big results so we are able to determine if we turn left, right, or head straight on this path. This never-ending uncertainty has been frustratingly long and one that it seems many people just don't understand. The fact that doctors just can't wave the magic stethoscope as a remedy so he can be a normal kid is just reality at this point. Then again, this is the season of miracles, where anything is possible. Here's hoping for a call of good news today.
Of course, we've also had our share of appointments to run to as well. In fact, Friday's was one we were not expecting. After noticing a few spots around Cole's chin that quickly exploded into hives on his cheek, immunology said they wanted to see him at the hospital. By the time they saw us, the spots had multiplied, spreading to his back. While they ran various tests, since we will not have any results until today at the earliest, Cole was started on a course of antivirals to combat any of the possible exposures he cannot fight.
Unfortunately, all of these developments may need us to wait on this week's procedure.
In the meantime, we are still waiting for the other big results so we are able to determine if we turn left, right, or head straight on this path. This never-ending uncertainty has been frustratingly long and one that it seems many people just don't understand. The fact that doctors just can't wave the magic stethoscope as a remedy so he can be a normal kid is just reality at this point. Then again, this is the season of miracles, where anything is possible. Here's hoping for a call of good news today.
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